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Liam’s MRI Results

First I had to show this picture of my son in the shorts I found at the Just Between Friends sale. They crack me up!

When we left the house at 7:30 in the morning, my dad in-tow, I had found peace with my son getting an MRI. By the end of the morning I was wondering why I had been so scared. But only because he handled it like a champ. He didn’t shed a single tear when they inserted his IV. Granted we did a lot to distract him, but add toughness to the list of things my son exudes.

After less time than they quoted us, we were back in the recovery room and Liam was pretty wide awake, though woosey! Let me tell you it was funny to take him home all drugged up and saying funny things. He was mentally so awake but his body couldn’t keep up. High-fives were more misses than hits. 🙂

We had to keep a close eye on Mr. Stumbly for the rest of the day. We snuggled on the couch, watched movies, and ate goldfish in three flavors (since he hadn’t had food since the night before). Then we all took a much-deserved nap. Mommy and daddy didn’t sleep too well the night before.

In the afternoon his pediatrician called with the scan results. What they found was a small area in the left center part of his brain that contained an old injury. It was caused by some stroke-type event that caused his brain to bleed. It’s only about 2x2x3cm (or maybe it was mm?) and is surrounded by healing tissue.

This is what we expected.

I’m happy they found what we were looking for. Sometimes injuries are so old they can’t see them anymore. And since we suspect Liam’s is about 18 months old, I’m glad it was still visible.

We’re still waiting to hear from his doctor at the hospital, but knowing this was probably a one-time thing and there’s no tumor or anything involved is relieving.

Last night my sweet step-sister dropped by and gave me the perfect gift. Evidently Pura Vida Bracelets are a big deal — guess I missed the boat. The bracelets are all hand-made in Costa Rica and 1% of the profits are given back to the Surfrider Foundation to clean up beaches worldwide.

What made this gift even more special to my heart is that they also have bracelets for awareness. Everything from autism, suicide prevention, Alzheimer’s, MS, CP, etc. Yep, she got me a bracelet that represents Cerebral Palsy awareness. I cried. The best part is they donate $1 out of the $5 to that specific organization.

The company believes in living life simply, enjoying life slowly, celebrating good fortune and not taking anything for granted. That’s something I can get behind.

So do it friends. Live simply and slowly and appreciate much. I have a lot to be thankful for in this new day.

And stay hydrated. 😉


My Son

I told you all a while back that I’d someday tell you why my son is so amazing. That day has come.

While I’d love to rave about the cute couple of finds I had over the weekend, or how well magazine creation is going, all I can think about this week is Thursday.

Thursday is going to be difficult.

Thursday my 21-month-old son is getting an MRI.

And I’m frightened.

It all started when my son was 3 months old. One day we noticed that his right arm was suddenly turned in, his hand in a fist and his arm laying lifeless by his side.

Strange, we thought.

His pediatrician diagnosed it as a birth injury — a brachial plexus injury to be exact. There was just one problem. He didn’t have a difficult birth. I never bought it.

Around 9 months old we started taking him to physical therapy to improve the use of his arm. I’ll take this opportunity to thank God for physical therapists and their patience, wisdom and dedication. Without therapy I don’t know where my son would be today.

He’s been in therapy for a year now. He’s been in therapy over half his life, every week, once a week. Over the past year we’ve added occupational therapy to help his fine motor skills and swimming therapy to help his overall movements and strength. He loves swimming, fyi. 🙂

My son was a scooter for a long time. He got around on his bum for months before he was finally able to pull himself up and try walking. He didn’t walk until he was 17 months old.

That was scary.

And when he finally started walking his PT noticed some weakness in his right leg, too. So we decided to see a specialist at the children’s hospital here in town. We met with Dr. Rinaldi in the rehab department and the man is an amazing person. He got on the floor with my son and played with him while observing his physical abilities. I am thankful for that man and his kind staff.

His diagnosis was Cerebral Palsy, specifically Hemiplegia, which is a weakness focused on one side of the body. It wasn’t unexpected as his PT had suspected this and prepared us, which I am thankful for, as I may have broken down in hysterics right then and there in the doctor’s office.

But as far as brain problems go, this is the one they say they’d choose if they had to. It was probably caused by a brain bleed, but we’ll see what’s going on on Thursday. Sometimes injuries are so old they can’t see them, but hopefully we’ll get some answers.

I’m secretly hoping the MRI will show how big and amazing this kid’s brain is. At 20 months he was counting into the 20s, singing his ABCs, identifying letters, letter sounds, upside down letters, shapes, colors, numbers, reading us his books from memory, and so much more. I can’t keep up with the kid.

The most difficult parts of all of this have been the random stages of grief. Like seeing him run around at the play area at the mall and noticing the obvious difference between him and the other kids — although to the untrained eye, he probably looks fairly normal. Watching him fall over and over again (which has been helped by the foot brace he got a few weeks ago). Seeing the frustration in his eyes when he doesn’t understand why things are so difficult to do with his right hand.

But the thing about kids with special needs is that they’re constantly amazing you. I forget how desperately I prayed for him to be able to walk … for months. And then one day he did. And now he squats, holds big toys with two hands (and says “bof hands” while he does … that’s therapy for you!), tries to jump, runs pretty fast and sits up and lays down really well. These are all things that have amazed me and made me so thankful for his determination.

This little kid, this baby whom I carried around with me for the better part of a year, this naive little boy has shown me more in nearly two years about perseverance, love, joy, patience, acceptance and hope than I ever thought possible.

No matter how many times he falls, he gets back up. And that’s a lesson we all need to learn.

So that’s why I talk about how amazing my son is. Not just for his unbelievable smarts, but for his will.

Pray for us this week friends. This MRI means sedation at his age, and though I know it will be harder on us than it is on him, the thought of not being able to comfort him when he is scared breaks my big old heart.

Feel free to ask me anything about Liam. We’re pretty open books.

I’ll update you all on Thursday.